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The Tuberous Sclerosis Alliance (TS Alliance) supports the vital role that a tuberous sclerosis complex (TSC) clinic can play in improving the lives of those affected. Below is information on TSC clinics in various regions.

Alabama

Birmingham
University of Alabama Birmingham Tuberous Sclerosis Clinic
Co-Directors: E. Martina Bebin, M.D., M.P.A. and Bruce Korf, M.D., Ph.D.
Coordinator:  Jessica Krefting, R.N.
Age Range Seen: Children and Adults
Clinic Frequency: Monthly (second Tuesday)
Specialties Offered: cardiology, dentistry, dermatology, endocrinology, epilepsy, genetics, genetic counselor, nephrology, neurology, neuropsychology, neurosurgery, ophthalmology, plastic surgery, psychology, pulmonology, urological surgery
For more information about the UAB TS Clinic contact Jessica Krefting, R.N. at (256) 533-0833. To schedule an appointment, contact Vickie Garmon in the Department of Genetics at (866) 822-4362 or (205) 934-5567.

Phoenix
The Tuberous Sclerosis Planning Clinic, Children’s Rehabilitative Services (CRS)
Medical Director of CRS Clinic: Cara Wright, M.D.
Director of Neurology Subspecialty Service: Vinodh Narayanan, M.D.
Coordinator:  Sally Cress, R.N. 
Range Seen: Children who are eligible for CRS services
TSC Clinic Frequency: Quarterly
Specialties Offered: medical and surgical sub-specialists provide services to patients who are enrolled at St. Joseph’s Hospital’s Children’s Rehabilitative Services in Phoenix, AZ
For more information or to schedule an appointment, contact Sally Cress, RN at (602) 406-4243.

Phoenix
Barrow Tuberous Sclerosis Center
Director: Vinodh Narayanan, M.D. 
Coordinator:  Cleo Park, C.P.N.P 
Range Seen: Adults, and children who are not eligible for CRS services.
TSC Clinic Frequency: Second Wednesday of every month
Specialties Offered: genetics, epileptology, neurology, neurosurgery, neuropsychology, pulmonology, and psychiatry (children)
For more information of services offered or to schedule an appointment, contact Cleo Park, CPNP at (602) 406-3839.

California

Loma Linda
The TSC Clinic at Loma Linda University Medical Center and Children's Hospital
Located at the Pediatric Neuroscience Center
2195 Club Center Drive, Suite A
San Bernardino, CA 92408
Director: Stephen Ashwal, M.D.
Coordinator:  Holly Bernardi, R.N.
Age Range Seen: Children and Adults
Clinic Frequency: Biweekly
Accepts Uninsured/Underinsured: Yes (sliding scale)
Specialties Offered: cardiology, dermatology (pediatric and adult), genetics, nephrology (pediatric and adult), neurology (pediatric and adult), neurosurgery, ophthalmology, psychology, psychiatry (pediatric and adult), urology (pediatric and adult), internal medicine, neuroradiology, orthopedics, pediatrics, rehabilitation medicine
To schedule an appointment or to speak to the Nurse Coordinator, Holly Bernardi, RN, call (909) 835-1825.

Los Angeles
TSC Clinic at UCLA
Director: Joyce Y. Wu, M.D.
Coordinator:  Angela Perez
Age Range Seen: Infants to Adolescents (Individuals over 18 years old are referred to Adult Neurology Service at UCLA for evaluation)
Clinic Frequency: varies/Tuesday
Accepts Uninsured/Underinsured: Contact Clinic for information
Specialties Offered: cardiology, dermatology, genetics, nephrology, neurology (pediatric and adult epileptologists), neurosurgery (epilepsy), ophthalmology, psychology, psychiatry, neuroradiology.  
To schedule an appointment please contact Angela Perez at (310) 206-4037 to get information on how to get a new patient referred to UCLA – TSC clinic. You can also email her at aperez@mednet.ucla.edu

Colorado

Denver
The Children's Hospital TS Clinic
Co-Directors: Paul Levisohn, M.D. and Susan Koh, M.D.
Coordinator:  Dee Daniels, R.N., P.N.P.
Age Range Seen: Children
Clinic Frequency: Monthly
Accepts Uninsured/Underinsured: Yes, per hospital policy
Specialties Offered: genetics, neurology, neuropsychology, and dermatology, nephrology, and opthalmology as needed
To schedule an appointment, contact Dee Daniels, RN, PNP at (720) 777-6895.

Connecticut

Hartford
Neurogenetics Clinic at Connecticut Children's Medical Center
Director: Francis DiMario, Jr., M.D.
Coordinator:  Deborah Johnson, R.N.
Age Range Seen: Children and Adults
Clinic Frequency: Weekly
Accepts Uninsured/Underinsured: Yes (underinsured)
Specialties Offered: cardiology, dermatology, genetics, nephrology, neurology (pediatric and adult), neurosurgery, ophthalmology, psychology, psychiatry, plastic surgery, urological surgery
To schedule an appointment, call (860) 545-9460.

District of Columbia Area

Florida

Miami
Miami Children's Hospital
Director: Michael Duchowny, M.D.
Coordinator:  Michelle Perez, M.S.N., A.R.N.P.
Age Range Seen: Children and Adults
Clinic Frequency: Contact TSC clinic coordinator for information
Accepts Uninsured/Underinsured: Yes, per hospital policy
Specialties Offered: cardiology, nephrology, neurogenetics, neurology, neuroradiology, neurosurgery, ophthalmology, pulmonology, and rehabilitative services.
To schedule an appointment, contact Michelle Perez, MSN, ARNP at (786) 624-3536.

Georgia

Atlanta  
Atlanta Tuberous Sclerosis Multidisciplinary Clinic Without Walls
Located at the Judson L. Hawk Clinic for Children at Children's Healthcare of Atlanta, 5455 Meridian Mark Road NE, Atlanta, GA 30342 
Director: Robert Flamini, M.D.
Coordinator:  Jennifer Ganote, R.N., A.S.N., C.C.R.C.
Age Range Seen: Infants through age 21 years. Adults with TSC will be referred to Sandra Helmers, M.D. at Emory University Medical Center.
TSC Clinic Frequency: Monthly, First Thursday
Specialties Offered*: cardiology, dermatology, genetic counseling, nephrology, neurology, neuropsychology, neurosurgery, ophthalmology, pulmonology, social work, urology
To make an appointment, contact Jennifer L. Ganote, RN, BA, ASN, CCRC at (404) 785-2186 or 1-(800)-803-5437; FAX (404) 785-2220. 

Illinois

Chicago
University of Chicago
Director: Michael Kohrman, M.D.
Coordinator:  Patti Ogden, M.S.N., A.P.N., N.P.
Age Range Seen: Children and Young Adults
Clinic Frequency: Monthly
Accepts Uninsured/Underinsured: Yes
Specialties Offered: dermatology, genetics, neurology (pediatric), neurosurgery, psychology, social work, urology
To schedule an appointment contact (773)702-6169 and Press “2” for specialty clinic.

Massachusetts

Boston
The Carol & James Herscot Center for Children and Adults with TSC at Massachusetts General Hospital
Director: Elizabeth Thiele, M.D., Ph.D.
Coordinator:  Jan Paolini, R.N., M.S.N. 
Age Range Seen: Children and Adults
Clinic Frequency: Weekly
Accepts Uninsured/Underinsured: Yes (sliding scale)
Specialties Offered: cardiology, dermatology, genetic counselor, nephrology (pediatric and adult), neurology (pediatric and adult), neurosurgery (epilepsy and SEGA), ophthalmology, psychiatry, psychology, urology, ketogenic diet nutritionist, neuroradiology, pulmonology, radiology, social work
To schedule an appointment contact Zaida Ortega at (617) 726-0241.

Boston
Multi-Disciplinary Tuberous Sclerosis Program
Children's Hospital Boston
Director: Mustafa Sahin, M.D., Ph.D.
Coordinator:  Jennifer McCrave, R.N., B.S.N., C.N.R.N.
Age Range Seen: Children and Young Adults
Clinic Frequency: Weekly
Accepts Uninsured/Underinsured: Yes
Specialties Offered: cardiology, dermatology, genetics, nephrology, neurology (pediatric), neurosurgery, ophthalmology, psychiatry, epileptology, social work
To schedule an appointment with Mustafa Sahin, M.D., Ph.D. in Pediatric Neurology, call Alicia Kutner at 617-355-8994.

Michigan

Detroit
Children's Hospital Michigan
Director: Harry T. Chugani, M.D.
Coordinator:  Kathleen Pawlik, M.S.N., R.N., C.P.N.P.
Age Range Seen: Children Only
Clinic Frequency: Bi-weekly
Accepts Uninsured/Underinsured: YES
Specialties Offered: cardiology, dermatology, genetics, nephrology, neurology (pediatric), neurosurgery, ophthalmology, psychology, psychiatry, urology, neuroradiology, orthopedics, pediatrics, rehabilitation medicine
To schedule an appointment contact Kathleen Pawlik, M.S.N., R.N., C.P.N.P. at 313-745-5788.

Minnesota

St. Paul
The TSC Clinic Without Walls, A Branch of Minnesota Epilepsy Group, PA® of United Hospital and Children's Hospitals and Clinics Minnesota
Director: Michael Frost, M.D.
Coordinators:  Carol Hoskins, R.N. (Children); Cathy Folland, R.N. (Adults)
Age Range Seen: Children and Adults
Clinic Frequency: Daily as Needed
Accepts Uninsured/Underinsured: Yes
Specialties Offered: dermatology, genetics, genetic counselor, neurology (adult and pediatrics), neurosurgery, nurse practioners, psychiatry, epileptology, social work, neuropsychology, pharmacology, pulmonology
For appointments, call Carol Hoskins, R.N. (Children) at (651) 241-5290; Cathy Folland, R.N. (Adults) at (651) 241-5290; or Elizabeth Siqveland, R.N., C.N.P. (Neurocutaneous Clinic at Children's Hospital) at (612)813-7076.

Missouri

St. Louis
Washington University TS Clinic at Children's Hospital
Director: Michael Wong, M.D., Ph.D.
Coordinator:  Christine Immken, R.N.
Age Range Seen: Children Only
Clinic Frequency: Monthly
Accepts Uninsured/Underinsured: Yes
Specialties Offered: cardiology, dermatology, genetics, nephrology, neurology, neurosurgery, ophthalmology, psychology
For appointments, call scheduling at (314) 454-6120. For TSC-related questions, call Christine Immken, RN at (314) 454-6120.

New York

New York City
The Tuberous Sclerosis Center at New York University Medical Center 
(The TSC clinic at New York University (NYU) operates out of the NYU Comprehensive Epilepsy Center.)
Director: Josiane LaJoie, M.D.
Coordinator:  Kimberly Parker Menzer, N.P.
Age Range Seen: Children and Adults
Clinic Frequency: Daily as Needed
Accepts Uninsured/Underinsured: Yes, sliding scale
Specialties Offered:cardiology (pediatric), dermatology (pediatric), genetics, nephrology (pediatric and adult), neurology (pediatric and adult), neurosurgery (pediatric and adult), ophthalmology (pediatric and adult), psychology (neuro and developmental), psychiatry, social work, urology (pediatric), pulmonology
To schedule an appointment, call (646) 558-0871.

Ohio

Cincinnati
Children's Hospital Medical Center Tuberous Sclerosis Clinic
Director: David N. Franz, M.D.
Coordinator:  Melody Gulleman
Age Range Seen: Children and Adults
Clinic Frequency: Weekly
Accepts Uninsured/Underinsured: Yes
Specialties Offered: cardiology, dentistry, dermatology, educational advocacy, genetics, genetic counselor, nephrology, neurology (pediatric and adult), neurosurgery, ophthalmology (general and oncology), psychology, psychiatry, plastic surgery, social work, interventional radiology, pediatric nurse practitioner, pulmonology, vocational rehabilitation
To schedule an appointment or for information, contact Melody Gulleman at (513) 636-4222. Email: TSclinic@cchmc.org

Cleveland
TSC Care at CCF (The Cleveland Clinic Foundation)
Director: Ajay Gupta, M.D., F.A.A.P.
Coordinator:  Molly Delaney, C.N.P.
Age Range: Infants to Adults
Clinic Frequency: First Wednesday of each month
Accepts Uninsured/Underinsured: Yes, subject to CCF policy
Specialties Offered: cardiology, dental, dermatology, dermatology surgery, epilepsy/neurology, genetics, neuropsychology, neurosurgery, ophthalmology, psychiatry (behavior), pulmonology, radiology, social work, urology/renal
For more information or to schedule an appointment, contact Lauri Stegman (TSC Clinic Coordinator) or Molly Delaney, CNP (TSC Clinic advanced nurse practitioner) at 1-800-CCF-CARE ext. 5TSC6 (1-800-223-2273 ext. 58726), or e-mail tsc_care@ccf.org.

Pennsylvania

Philadelphia
University of Pennsylvania Medical Center
Co-Directors: Peter Crino, M.D., Ph.D. and Katherine Nathanson, M.D.
Coordinator:  Amanda Krause, M.S.N., C.R.N.P.
Age Range Seen: Children and Adults for general TSC care and genetics. Children under age 12 years old with neurological issues are referred to Children's Hospital of Philadelphia (CHOP) for evaluation.
Clinic Frequency: Weekly
Accepts Uninsured/Underinsured: Yes
Specialties Offered: dermatology, genetics, neurology (pediatric and adult), neurosurgery, urological surgery, interventional radiology, pulmonology
To schedule an appointment, call (215) 349-5312.

Pittsburgh
Children's Hospital of Pittsburgh
Director: Shelley Williams, M.D.
Coordinator:  Jennifer Diserio, C.R.N.P., C.P.N.P.
Age Range Seen:  Children to age 21 years.
Clinic Frequency: Monthly
Accepts Uninsured/Underinsured: Yes, sliding scale
Specialties Offered: dermatology, nephrology, neurology (pediatric and adult), neurosurgery, ophthalmology, social work
To schedule an appointment, call (412) 692-6170.

Tennessee

Nashville
The TSC Clinic at Monroe Carell, Jr. Children's Hospital at Vanderbilt
Director: Kevin C. Ess, M.D., Ph.D.
Coordinator:  To be named
Age Range: Infants to 18 years
Clinic Frequency: Monthly
Specialties Offered: cardiology, dermatology, genetics, nephrology, neurology, neurosurgery, ophthalmology, psychiatry, psychology
For more information or to schedule an appointment, call (615) 936-5536.

Texas

Dallas
Texas Scottish Rite Hospital for Children
Director: Steven Sparagana, M.D.
Coordinator:  Lisa Auste, R.N.
Age Range Seen: Children Only
Clinic Frequency: First, Third, and Fifth Tuesdays and Fourth Thursday of Each Month
Accepts Uninsured/Underinsured: Yes but must be a Texas resident with diagnosis of TSC and sponsorship by a Mason
Specialties Offered: dentistry, dermatology, genetics, genetics counselor, nephrology, neurology, neurosurgery, ophthalmology, psychology, psychiatry, social work, urology, urological surgeon, dietary staff, interventional radiology, occupational therapy, physical therapy
For appointments contact either Lisa Auste, R.N. at (214) 559-7549 or Catherine Thompson at (214) 559-7818. Email: TSCclinic@tsrh.org.

Ft. Worth
Cook Children’s Clinic for Tuberous Sclerosis Complex
Director: M. Scott Perry, M.D.
Coordinator:  Susie Spellman, R.N.
Age Range: Children
Clinic Frequency: Monthly
Accepts Uninsured/Underinsured: Contact Clinic for information.
Specialties Offered: cardiology, dental, endocrinology, epilepsy/neurology, gastroenterology, genetics, nephrology, neuropsychology, neurosurgery, and pulmonology.
For more information or to schedule an appointment call Charlene McCue at 682-885-2500.

Virginia

If you're interested in starting a TSC Clinic, please email JoAnne Nakagawa at jnakagawa@tsalliance.org.

Read the TS Alliance and TSC Clinic Scope of Relationship Policy.