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BOOKS, BROCHURES & BOOKLETS

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AN INTRODUCTION TO TSC  PDF FILE
The purpose of this brochure is to explain TSC and its variable features; outline some of the commonly needed medical tests; and to help individuals cope with the diagnosis.

UNA INTRODUCCIÓN AL CET  PDF FILE
Complejo de Esclerosis Tuberosa

IN THEIR OWN WORDS:
PERSONAL JOURNEYS WITH TSC PDF FILE
This booklet was compiled to give readers a glimpse into the lives of ordinary people and families who face the challenges of TSC on a daily basis, whether they are infants, children, teens or adults.

LIVING WITH TUBEROUS SCLEROSIS: STORIES OF LOVE AND HOPE
This book is a unique, direct and compassionate source of information and hope. Families will know they are not alone in their struggles with tuberous sclerosis. It contains 26 biographies, or "stories of love", by parents of mildly affected children to severely affected children, and by six adults with TS.  The book is free for individuals and families who are directly affected by TS. If you are interested in receiving or ordering a copy, please e-mail the TS Alliance at info@tsalliance.org or call (800) 225-6872.

TUBEROUS SCLEROSIS COMPLEX, THIRD EDITION
This edition includes updated information on all aspects of tuberous sclerosis, from the genetics of the disease to specific organ involvement. Newly revised diagnostic criteria are included, as well as a chapter on the impact of the diagnosis on the patient and their family.  If you are interested in ordering a copy of this book, please e-mail the TS Alliance at info@tsalliance.org or call (800) 225-6872. The reduced price of the book is $76, which includes shipping and handling in the U.S. There will be an additional $15 shipping fee for international orders.

THE SWEETEST SOUND: THE MIRACLE OF TAYLOR HESS
This book weaves together a gut-wrenching medical and personal journey, including the Hess families' ups and downs, into a narrative filled with sadness, surprise and sunshine. Mrs. Hess explains how Taylor, a child with TS, has beaten the odds through various medical means to become a bright, happy child.  Complete information is available online. Part of the proceeds benefit the Tuberous Sclerosis Alliance.